labellementeuse: a girl sits at a desk in front of a window, chewing a pencil (Default)
worryingly jolly batman ([personal profile] labellementeuse) wrote2006-11-14 01:10 pm
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In good news, I'm going in for my first rituximab treatment this thursday. This is a treatment that hopefully will make it possible for me to come off steroids permanently with a normal or safe count, so, you know, \o/! Should be about four cycles, they shouldn't take too long and shouldn't have any side effects.

In less good news, god almighty I hate my doctors up here. I'm thrilled that he's giving me rituximab, which I wouldn't have been able to get in CHCH. But jesus, I went along to see him, he said "Hi I have your notes from Ruth come in on Thursday morning and we'll give you the first dose." There wasn't even a question of whether or not I could make it (which I can't, actually, but fortunately my boss is wonderful and is finding me cover.) There was absolutely no discussion of what the treatment actually is, which I happen to know is a low-dose treatment administered by IV. I should theoretically be able to come off it in a few hours and have no or very few side effects, but heaven forfend that he talk about what those side effects might be or, you know, about the IV, or anything. He didn't take a blood test, he didn't suggest dropping my steroid dose - so I have no idea how they're supposed to tell if my count is going to be affected, and hey, I would quite like to come of the pred as soon as possible but forget actually talking to him about what level I can drop to - what I really want to do, and I think it woiuld be safe for me to do, is drop to fifteen but since I can't talk to him and have no idea what my count is like now, I can't (and, anyway, it's not smart for me to make an independent decision like that. Unfortunately, it looks like I'll be making a lot of these kind of decisions myself because he's not interested in helping me make them.)

Basically? He doesn't talk to me, has no interest whatsoever in making sure I understand anything and I don't like iot and I don't trust him and I miss my doctors in Christchurch. A lot.

Also I said I'd work tonight and I really, really don't want to, so WAH. WAH I SAY WAH.

[identity profile] cactus-cat.livejournal.com 2006-11-14 01:37 am (UTC)(link)
Is that your family GP? If you feel like changing GPs, I'd highly recommend Clare O'Brien at City GPs. Probably a bit further for you, but she's lovely, really easy to talk to.

[identity profile] keymash.livejournal.com 2006-11-14 01:43 am (UTC)(link)
BOO WORK. Blame Sergei. Tis his fault both that you have to cover him and that I am too sick to cover him instead of you covering him.

Not sure that sentence made sense! \o/ for rituximab, though.

[identity profile] cabaiste84.livejournal.com 2006-11-14 02:47 am (UTC)(link)
Health issues. Icky.

I've just been put on anti-depressants. So, you're not alone in the sickness factor...

Hope the treatment (and the doctor! Geez!) improves somewhat...

[identity profile] lady-larla.livejournal.com 2006-11-14 03:07 am (UTC)(link)
AAWWW....*scowls at the nasty doctor*
J is starting Ritaximab the second I can drag him into the hospital, 3 rounds for him. Arent you missing Ruth and Liam? But trust me they are also very much into the right were doing it on such and such date no checking convinience....but better than this other guy. Wish i could be with you...*hugs*

I know this might be kind of an offensive question but...

[identity profile] disturbed-kiwi.livejournal.com 2006-11-14 04:51 am (UTC)(link)
Did... did you try to ask him about this stuff?

[identity profile] kuril.livejournal.com 2006-11-14 07:10 am (UTC)(link)
I'd have the same problem. Not having answers to questions keep me up at night. Military doctors are notorious for being abrupt since they're usually overloaded as GPs. But a specialist? Are they really that hard pressed to take time with a patient to discuss the important issues of a treatment? That's awful. Maybe you caught him on a bad day. He could have been distracted and being an idiot for letting it get in the way of the patient. Blah.

[identity profile] sixth-light.livejournal.com 2006-11-14 08:28 am (UTC)(link)
Ick, stupid doctors. Not stupid stupid, obviously, just...bad people skills, huh?

If it makes you feel better, I managed to get yelled at (sort of) on my first day at work. (Note to Briscoes people: when my "trainer" has disappeared into the ether, you have not taught me how to use the intercom, there is no one in the front half of the store, I am the only person on checkout, and a customer wants a hold? THIS IS A LOSE-LOSE SITUATION FOR ALL CONCERNED.)

Although the rest of it went fine, and was much more interesting than McDonalds.

[identity profile] usagiko.livejournal.com 2006-11-15 07:33 am (UTC)(link)
Hey, my health blows too! :D WE ARE SISTERS

[identity profile] derrick-reeves.livejournal.com 2006-11-15 10:10 am (UTC)(link)
It sounds a bit like your doctor here is busy. You might be receiving the "I don't have time to explain this, let alone explain the fact that I don't have time to explain my lack of explanation!" attitude. Even if this isn't true, from what you've written about the situation, you may be better off trying to make yourself believe it; if it doesn't work, then complaining until people do nice things for you is always an option. ;-)


By the way, did you do anything for Howl's fiftieth birthday?

[identity profile] gianp.livejournal.com 2006-11-20 10:50 pm (UTC)(link)
We're playing a gig in Wellingtron this Friday at Happy. You should totally come along ow, so we can catch up.